For many of the most common diseases, non-white people commonly experience higher prevalence and mortality rates. Contemporaneously, few people of color are represented in clinical trials — even in diseases in which minorities are disproportionately burdened. Today, only 10 percent of study participants on average are minorities across indications.
Despite persistent and erroneous presumptions on the part of industry that historical medical abuses are what block diversity, the chief reason frequently cited right now by participants from diverse backgrounds is lack of real access to clinical research. They are not given enough information about the evolution of clinical trials or presented with legitimate opportunities to participate in them. We know firsthand that what ails clinical research is lack of broad-based patient engagement and we are changing this for the benefit of better outcomes across the board and on behalf of all stakeholders.
Clinical Ambassador is the liaison that creates novel opportunities to create visibility among underrepresented patient populations about specific studies and shed light in layman’s terms about clinical research in general. The underrepresented populations of individuals are often exactly who clinical researchers need most and we cost-effectively help to locate, attract and inspire these participants into a wide variety of randomized clinical trials.
Patient recruitment is hard. But it’s deeply gratifying and a whole lot of fun. We love a challenge, and we also lovepeople. How do we find these invisible, difficult-to-find people and recruit them to take part in important clinical research? That’s embarrassingly easy. We ask them.
We use a touch of design creative, a dash of diplomacy, a smidgen of marketing finesse, and a whole heap of desire and know-how about relating to people with a vested interest in better outcomes— no matter their race and ethnicity, their background or their location on the globe.
Based on that starter recipe, we add some pertinent health statistics and of course, your protocol. Then we can pinpoint potential trial participants who are your study market.
Our search can take many different shapes, but optimizing the reach of your recruitment message typically includes HIPAA-compliant networks and tools to identify chatter among communities of patients discussing their health concerns and conditions. Our presence and penetration has made connecting on cloud-based clinical research platforms much easier, but it still takes real relationship-building and ‘people’ professionals who know where to sleuth and how to make connections when the majority of the public is research-naive.
No other patient recruitment firms deliver our portfolio of services, nor share our unique skill set and first-person perspective. We are uniquely qualified to bring unprecedented exposure to your studies and ROI to your recruitment budget. And frankly, your money could never buy our level of enthusiasm about scientific research and advocacy on behalf of patients. We simply makes a bombshell of a difference. But only if you stop talking about it and start being about it.
Let’s face it: You will have to release your own fears and take your own chances if you expect the same from study participants. In reality, the challenges of diversity and inclusion are now opportunities laying in wait.
A new report is posing an important question and aiming it squarely at the research enterprise. Even if you work within industry and ponder this for a living, you'll want to take another look— this time from the outside looking in:
If Patients Are Crucial to Clinical Trials, Why Aren't They Treated That Way? There is a known problem with clinical trials – lack of participants. There are many reasons for this. Big Pharma has a bad reputation, some of it deserved. In some cases, they have put profits ahead of safety, endangering the lives of participants, and at times, entire groups of people. And despite abundant evidence that clinical trial participants should better reflect the populations that are affected by disease indication, those in charge generally fail at achieving diversity in their studies.
If you want to understand research reality from the outside, read on...
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